Using registry data to construct a comparison group for programmatic effectiveness evaluation: the New York City HIV care coordination program

Robertson, M. M., Waldron, L., Robbins, R. S., Chamberlin, S., Penrose, K., Levin, B., … & Nash, D. (2018). Using registry data to construct a comparison group for programmatic effectiveness evaluation: the New York City HIV care coordination program. American Journal of Epidemiology, 187(9), 1980-1989.

https://healthhiv.org/wp-content/uploads/2022/09/Robertson.pdf

To gauge and improve the effectiveness of care coordination programs, researchers looked at CCP evaluations of individuals with HIV. Oftentimes just looking at pre and post-program evaluations do not consider external events in a CCP participant’s life, which has an impact on the effectiveness of the program. Researchers suggest keeping a registry of possible events in the patient’s life. This way, care coordinators can be continuous and mindful of the patient’s circumstances.