Advocacy
HealthHIV brings a re-energized approach to addressing the advocacy agenda in order to improve health disparities, treat the medically underserved, advance chronic disease management, and redefine how HIV fits into a broader health care debate.
HealthHIV leads the National Resource Center for Care Coordination and Pozitively Aging with HIV, which builds the capacity of HIV and primary care providers to coordinate care for people living and aging with HIV across a lifetime. This program enhances provider and patient knowledge related to the experiences of PWH over 50 and the comanagement of conditions associated with aging with HIV through data collection and medical education.
HealthHIV—along with the National Coalition for LGBTQ Health—seeks to better align care and prevention service delivery with existing evidence-based, culturally sensitive standards of care for LGBTQ people to improve health outcomes and qualities of life.
We engage partners across all levels of advocacy, from federal and state-specific issues, to health systems and payers, providers and manufacturers. But most of all, we engage with our communities to drive our work.
Florida ADAP Situation
Joint Statement on the Proposed Changes to Florida’s AIDS Drug Assistance Program
ADAP Advocacy and HealthHIV Conjoin Patient and Provider Concerns Threatening the Well-Being of Floridians Living with HIV/AIDS.
Read MoreJoint Statement/Comments on the Proposed Changes to Florida’s AIDS Drug Assistance Program
ADAP Advocacy and HealthHIV are in opposition to the proposed changes to services for People Living with HIV/AIDS (PLWHA) as set forth in the Notice of Proposed Rule (NPR) #30517381 promulgated by the Florida Department of Health (DOH).
Read MoreFlorida’s AIDS Drug Assistance Program
important developments and action items to share.
Read MoreAdvocacy Activities
HealthHIV engages in a variety of Advocacy initiatives, grounded in an understanding of both the social determinants of health and the latest data and science.
Healthy Aging Hub
The HealthHIV Healthy Aging Hub builds the capacity of HIV and primary care providers to coordinate care for people living and aging with HIV across a lifetime. This program enhances provider and patient knowledge related to the experiences of PWH over 50 and the comanagement of conditions associated with aging with HIV through data collection and medical education.
National LGBTQ Health Awareness Week
Through a series of educational and advocacy efforts, we work to uplift the voices of LGBTQ individuals, healthcare professionals, and advocates to foster informed dialogue and drive meaningful engagement in LGBTQ health care.
PleasePrEPMe
The original site for PrEP consumers, frontline providers and clinicians, PleasePrEPMe is the first searchable and location-responsive provider directory for PrEP and PEP services.
Prescription Drug Affordability Boards (PDABs) Resource and Action Center
With PDABs becoming increasingly popular throughout the country, HealthHIV is advocating for the crucial needs of patients amid rapid policy change, and critical conversations happening on this subject.
Pozitively Aging
HealthHIV’s Pozitively Aging program improves access to services and care coordination for people with HIV (PWH) over 50 and health outcomes through enhancing care coordination/access, health literacy, and patient-provider communications.
SYNChronicity
Organized by HealthHIV, HealthHCV, and the National Coalition for LGBTQ Health, this one-of-a-kind national conference synchronizes the healthcare community by bringing together thousands of health professionals, advocates, and consumers to SYNC ideas and practice to effectively address HIV, HCV, STIs, LGBTQ Health, Drug User Health, and Health Equity.
Issues in Focus
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Florida AIDS Drug Assistance Program
A few important developments and action items to share on the Florida ADAP situation.
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Medicare Drug Price Negotiation Opportunities and Resources
The Centers for Medicare & Medicaid Services (CMS) has announced the selection of a widely used HIV treatment for Medicare price negotiation under IPAY2028 as part of the Inflation Reduction Act (IRA). This is a critical time to share your experience.
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HIV & Aging Issues Brief: January 2026
Welcome to the first HIV & Aging Issues Brief for January of 2026. Below is compiled a series of key public health policy issues and research items pertinent to the ongoing work of HealthHIV and the Coalition—happening both nationally and internationally.
Latest Advocacy Resources
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MAPRx Recent Medicare Part D Changes, September 2025
This infographic from MAPRx describes Medicare Part D changes that may help with out of pocket costs.
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ICC COVID Immunization Dashboard
To help navigate the current landscape in each state, the Immunocompromised Collaborative immunization dashboard from the Immune Deficiency Foundation tracks who is eligible for the 2025-2026 COVID-19 vaccine, as well as who can get it from a pharmacy without a prescription and whether state-regulated health insurance plans have to cover the cost.
